Friday 29 August 2014

Strangers and Stupid Comments

We are all born ignorant, but must work hard to remain stupid - Benjamin Franklin

I knew it was going to happen eventually at some point.

Since the day Joshua was diagnosed at the 20 week scan, the wife and I had both worried about it, talked about it, discussed what we would do when it happened. We knew it would happen... Kind of sad, but given human beings penchant for doing stupid or nasty things it was unavoidable.

This week I heard a comment by a stranger about JJs cleft. Actually I didn't hear it first hand, I heard it from my wife, who heard it from my mother in-law, who had actually heard the bloke say it. But when the wife told me, I felt like I was there and had heard it first hand.

Since I knew this situation was going to happen, and since I had mentally prepared myself for it, I had assured myself I would always remain calm in the face of other peoples stupidity.

I failed at this. I failed miserably.

Not only did I not remain calm, I went a little crazy, you see my wife told me in our living room, alone, miles away and several hours after the offence. The conversation went a little like this:

Wife: So my mum heard someone make a comment about JJ today
Me: Who? What kind of comment
Wife: Some bloke, a few hours ago in Wetherspoons, he turned to his friend and said "Did you just see that babies face, what's wrong with it?"
Me: (turning a funny shade of purple) You what? The little cock juggling prick...... His face? His FACE? My son was born that way pal, what the hell is your excuse you ugly little dickhead, you want to....
Wife: James, hes not here is he? Why are you ranting to no one?
Me: Oh yeah... I dunno.



Unfortunately I am nigh on certain that would have been my reaction if I had heard it first hand. So apart from learning I have deep rooted anger issues and enjoy shouting at thin air, I have also learnt that I'm not nearly as resolved in this department as I need to be.

You see, that comment could have just as easily have been a genuine question rather than a nasty remark. The fact is, that not many people have any experience of cleft lip or palate, and thus asking what it is, is acceptable in my view.

Asking "what is wrong with his face?" is not however. In any way, shape or form, and will clearly result in daddy bitch becoming somewhat irate.

But essentially what I am getting at, is its a very fine line between a real question and somebody saying a stupid, nasty comment.

How do you tell? And if you can tell, what in gods name do you do as a response?

Lets say for example I was there, and didn't go all "Ross Geller with his sandwich" when I heard it, because thought it was a question. Do I turn around and go and educate the person? Do I carry on walking?

No idea.

What if it was an insult? Obviously reacting the way I did in my own living room isn't going to end very well, either for myself, or the other person, so what in gods name do you do?

I don't have the answer yet.

Firstly I want to make it clear to any expectant parents of cleft babies that the above isn't the norm. We have taken Joshua out tonnes of times and the above is the first situation of this kind.

There are people that do double takes when we push him out in his pram, but, in my head at least, that is a normal human reaction, despite how annoying it is at the time.

But 99% of the people that have ever said anything about JJ have been lovely, nice, kind comments. So don't worry.

But throughout mankind's history people have proven themselves to be somewhat stupid, and therefore we need to accept that it is highly likely someone will say something stupid at some point. How we react is up to us, but I genuinely don't have the answer to what that is.

This blog is placed on several cleft forums and thus there are a lot of people out there with more experience than I have. So I would like you to comment below if you have time, and let me know what your feelings on the matter are, and how you might deal/ have dealt with a similar situation before?

In terms of a Joshua update, all I am going to say is that the wife managed to get a smile picture, which made my week. Because its the most stunning smile I have ever seen and needs to be shared with the world!

JJ, Looking awesome.




5 comments:

  1. What a fantastic smile!! Makes Grandma's heart melt x x x great blog James x x x

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  2. I hope you don't mind but I have shared this on my Facebook page. I am a mum to a 9 week gorgeous girl who was born with unilateral cleft lip and palate. So far we have not received any negative or 'stupid' comments from strangers, only positive ones. And the thing that has surprised me most is how many people either know or are related to someone who has also been born with clefts. Like you I don't know how i'll react if / when this happens, I hope i'll be calm but being a Gemini I am known to have an angry streak sometimes! Thanks for sharing.

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  3. Hi Louise,

    I don't mind the share at all. Share away! Thanks for commenting.

    First of all congratulations on your baby girl!

    In regards to your comment, this is the only bad comment we have received in 11 weeks, the rest have indeed been really nice and positive.

    We too have been surprised how many people know someone who has a cleft, although in my experience so far, for every one person that knows about it, there are 10 that don't. I will be honest here, I didn't know what it was until our 20 week scan!

    I really hope this "kisses for CLAPA" campaign does well, as it would certainly raise awareness of it, which can only be a good thing.

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  4. Hi James. I just came across your blog. Our daughter is eight months and had surgery eight weeks ago. For the most part people were pretty good, but we got some corkers too. Some people are just pretty bloody ignorant. One woman (about forty) said 'was your daughter born with that harelip'. I quickly corrected the harelip comment (which you come to expect from older people, but a forty year old!!!) and it took every bit of strength fit me to bit reply ' oh no we got that done'. I mean, really... Was she born with it. Ha! Kids are the funniest and most direct. 'what happened to her lip' then you tell them and two seconds later they say 'yeah, but what happened to her lip'.

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    Replies
    1. Hi,

      They are ignorant sometimes, but I do wonder if that is literally due lack of knowledge to some degree. I genuinely had no idea what cleft was before JJ. Well I did, but I thought it was a third world related illness.

      Not because I was ignorant, but because I didn't know! That said, I have heard stories like yours that does show people don't think before they speak. Which is a shame.

      As for the harelip comment, I don't like that either! Kids worry me the most to be honest. Not what they say to me, because "out of the mouth of babes" and all, but what they might say to him.

      That said, as I posted above 99% of comments we get are great ones. Maybe we shouldnt get so hung up on the 1%, however hard that is!

      Thanks for commenting

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